Hemophilia

Understanding Hemophilia

Hemophilia is a genetic condition that affects the body’s ability to form blood clots. This means that even a small injury can lead to prolonged bleeding, and in some cases, bleeding may occur spontaneously—such as frequent nosebleeds or internal bleeding into the joints.

People living with hemophilia often require specialized medications to manage bleeding episodes and prevent joint damage. With consistent treatment and support, many patients are able to lead active, healthy lives.

As part of your care team, your pharmacy is here to assist you with timely access to clotting factor therapies, medication education, and refill coordination.

✅ Hemophilia Treatment Checklist

Diagnosis & Initial Steps:

  • [ ] Confirm type of hemophilia (e.g., A or B) and severity with your healthcare provider

  • [ ] Undergo baseline lab testing, including clotting factor levels and inhibitor screening

  • [ ] Receive education on bleeding risk, symptom recognition, and treatment protocols

  • [ ] Identify a trusted pharmacy for reliable access to clotting factor therapy

Factor Replacement & Medication Management:

  • [ ] Start prescribed factor replacement therapy (prophylactic or on-demand)

  • [ ] Learn how to store and administer your medication at home, if applicable

  • [ ] Maintain a supply of factor concentrate and delivery supplies (needles, syringes, tourniquets)

  • [ ] Set a schedule for infusions and keep a treatment log

  • [ ] Report any missed doses, allergic reactions, or signs of inhibitor development to your care team

Preventive Care & Lifestyle Support:

  • [ ] Avoid high-impact sports or activities with a high risk of injury

  • [ ] Use protective gear (e.g., helmets, knee pads) when needed

  • [ ] Schedule routine dental cleanings and inform your dentist of your condition

  • [ ] Follow a well-balanced diet and stay hydrated

  • [ ] Discuss pain management and joint care strategies if needed

Ongoing Monitoring & Pharmacy Support:

  • [ ] Schedule regular check-ins with your hematologist and care team

  • [ ] Complete periodic blood work to monitor clotting factor levels and inhibitors

  • [ ] Contact your pharmacy team for help with refills, injection training, or dose adjustments